UNITED KINGDOM PRIMARY IMMUNODEFICIENCY NETWORK

Registration #1164466 · Registered

http://ukpin.org.uk/

info@ukpin.org.uk

9 Appold Street London EC2A 2AP

62
out of 100
Good Standing

The main objectives of UK PIN are the development of best practice guidance, maintenance of patient registry and advancement of education in primary immunodeficiency. The charity seeks to achieve its objectives by aiming to improve patient care through standardisation of care based on evidence and enhanced understanding of disease.

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About UNITED KINGDOM PRIMARY IMMUNODEFICIENCY NETWORK

UNITED KINGDOM PRIMARY IMMUNODEFICIENCY NETWORK is a registered charity in England and Wales (registration number 1164466). Based on official Charity Commission data, it holds a "Good Standing" rating with a CharityScore of 62/100 — a charity in good standing with solid but not exceptional governance indicators. This reflects adequate performance across most criteria, though some areas fall short of the strongest-rated charities. In its most recent reporting year (2022), UNITED KINGDOM PRIMARY IMMUNODEFICIENCY NETWORK reported a total income of £55,000 and total expenditure of £227,000, a spending ratio of 413% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, UNITED KINGDOM PRIMARY IMMUNODEFICIENCY NETWORK describes its activities as follows: The main objectives of UK PIN are the development of best practice guidance, maintenance of patient registry and advancement of education in primary immunodeficiency. The charity seeks to achieve its objectives by aiming to improve patient care through standardisation of care based on evidence and enhanced understanding of disease. Our analysis has identified 1 high-severity concern for this charity. We recommend reviewing the detailed flags below before donating. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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⚠️ Red Flags (1)

High
Financial: Spending £227,000 vs income £55,000 — ratio 4.1x

Score Breakdown

Trustees & Governance20 / 25
Financial Health5 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 412.7% of income spent on charitable work

YearIncomeSpendingRatio
2022£55,000£227,000413%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026