TIMOTHY SYNDROME ALLIANCE (TSA)
Registration #1185523 · Registered
www.timothysyndrome.orgsophie@timothysyndrome.org
8 Butt Street Minchinhampton GL6 9JP
Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.
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About TIMOTHY SYNDROME ALLIANCE (TSA)
TIMOTHY SYNDROME ALLIANCE (TSA) is a registered charity in England and Wales (registration number 1185523), rated "Platinum" with a CharityScore of 90/100 — one of the highest-rated charities in England and Wales based on official Charity Commission data. In its most recent reporting year (2025), TIMOTHY SYNDROME ALLIANCE (TSA) reported a total income of £205,304 and total expenditure of £128,996 (a spending ratio of 63%, indicating a reasonable proportion of funds directed to charitable work). According to the Charity Commission, TIMOTHY SYNDROME ALLIANCE (TSA) operates with the following stated purpose: Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment. No significant governance concerns were identified for TIMOTHY SYNDROME ALLIANCE (TSA) in our analysis. This profile is based on publicly available data from the Charity Commission for England and Wales and is updated regularly. CharityScore provides independent, data-driven transparency ratings to help donors give with confidence.
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Financial History
Latest spending ratio: 62.8% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £205,304 | £128,996 | 63% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026