THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO
Registration #1186647 · Registered
www.smith-magenis.orgcontact@smith-magenis.co.uk
61 High Street PEWSEY SN9 5AF
We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability. Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.
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About THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO
THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO is a registered charity in England and Wales (registration number 1186647). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 88/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2024), THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO reported a total income of £81,579 and total expenditure of £84,648, a spending ratio of 104% which is broadly in line with its income. According to the Charity Commission register, THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO describes its activities as follows: We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability. Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS. Our analysis found no significant governance concerns for THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 103.8% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £81,579 | £84,648 | 104% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026