THE EHLERS-DANLOS SOCIETY
Registration #1180984 · Registered
https://www.ehlers-danlos.cominfo@ehlers-danlos.com
Office 7 35-37 Ludgate Hill EC4M 7JN
Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.
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About THE EHLERS-DANLOS SOCIETY
THE EHLERS-DANLOS SOCIETY is a registered charity in England and Wales (registration number 1180984), rated "Platinum" with a CharityScore of 92/100 — one of the highest-rated charities in England and Wales based on official Charity Commission data. In its most recent reporting year (2025), THE EHLERS-DANLOS SOCIETY reported a total income of £1,552,526 and total expenditure of £1,409,241 (a spending ratio of 91%, indicating strong allocation of funds to charitable activities). According to the Charity Commission, THE EHLERS-DANLOS SOCIETY operates with the following stated purpose: Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions. No significant governance concerns were identified for THE EHLERS-DANLOS SOCIETY in our analysis. This profile is based on publicly available data from the Charity Commission for England and Wales and is updated regularly. CharityScore provides independent, data-driven transparency ratings to help donors give with confidence.
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Financial History
Latest spending ratio: 90.8% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £1,552,526 | £1,409,241 | 91% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026