THE DYSTONIA SOCIETY
Registration #1062595 · Registered
www.dystonia.org.ukinfo@dystonia.org.uk
3rd. FLOOR 89 ALBERT EMBANKMENT SE1 7TP
Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research
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About THE DYSTONIA SOCIETY
THE DYSTONIA SOCIETY is a registered charity in England and Wales (registration number 1062595). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 88/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), THE DYSTONIA SOCIETY reported a total income of £422,337 and total expenditure of £402,567, a spending ratio of 95% which is broadly in line with its income. According to the Charity Commission register, THE DYSTONIA SOCIETY describes its activities as follows: Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research Our analysis found no significant governance concerns for THE DYSTONIA SOCIETY. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 95.3% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £422,337 | £402,567 | 95% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026