Stickler Syndrome UK
Registration #1060421 · Registered
www.stickler.org.ukcontact@stickler.org.uk
30 Juniper Close MAIDSTONE ME16 0XP
Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.
Are you from Stickler Syndrome UK? Upgrade to a Pro Profile to add your logo, description, and a direct donate button.
About Stickler Syndrome UK
Stickler Syndrome UK is a registered charity in England and Wales (registration number 1060421), rated "Platinum" with a CharityScore of 90/100 — one of the highest-rated charities in England and Wales based on official Charity Commission data. In its most recent reporting year (2024), Stickler Syndrome UK reported a total income of £46,388 and total expenditure of £32,619 (a spending ratio of 70%, indicating a reasonable proportion of funds directed to charitable work). According to the Charity Commission, Stickler Syndrome UK operates with the following stated purpose: Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline. No significant governance concerns were identified for Stickler Syndrome UK in our analysis. This profile is based on publicly available data from the Charity Commission for England and Wales and is updated regularly. CharityScore provides independent, data-driven transparency ratings to help donors give with confidence.
Want a detailed Benchmark Report for Stickler Syndrome UK?
Get a 4-page PDF report comparing this charity to similar organisations — including trustee count, spending ratio, income benchmarks, a live website audit, and personalised recommendations for improving visibility and score.
Request Free ReportScore Breakdown
Financial History
Latest spending ratio: 70.3% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £46,388 | £32,619 | 70% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026