RARE DISEASE NURSE NETWORK
Registration #1199654 · Registered
https://www.rdnn.org/kay.parkinson@rdnn.org
71-75 Shelton St Covent Garden WC2H 9JQ
Developing a rare disease nurse network to help support families, carers and professionals working with people affected by rare diseases.
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About RARE DISEASE NURSE NETWORK
RARE DISEASE NURSE NETWORK is a registered charity in England and Wales (registration number 1199654). Based on official Charity Commission data, it holds a "Needs Review" rating with a CharityScore of 48/100 — a charity with several areas that warrant further review before donating. This score suggests several areas of concern that donors should investigate before giving. No financial data has been submitted to the Charity Commission for RARE DISEASE NURSE NETWORK, which may indicate the charity's income falls below the filing threshold, or that returns have not been submitted. According to the Charity Commission register, RARE DISEASE NURSE NETWORK describes its activities as follows: Developing a rare disease nurse network to help support families, carers and professionals working with people affected by rare diseases. Our analysis identified 1 minor governance flag for RARE DISEASE NURSE NETWORK. No critical or high-severity concerns were found. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026