MYOTUBULAR TRUST
Registration #1137177 · Registered
www.myotubulartrust.orgcontact@myotubulartrust.org
15A BARNARD ROAD LONDON SW11 1QT
The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.
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About MYOTUBULAR TRUST
MYOTUBULAR TRUST is a registered charity in England and Wales (registration number 1137177). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 88/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2024), MYOTUBULAR TRUST reported a total income of £138,416 and total expenditure of £148,309, a spending ratio of 107% which is broadly in line with its income. According to the Charity Commission register, MYOTUBULAR TRUST describes its activities as follows: The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date. Our analysis found no significant governance concerns for MYOTUBULAR TRUST. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 107.1% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2024 | £138,416 | £148,309 | 107% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026