KEEP ME BREATHING
Registration #1201757 · Registered
keepmebreathing.comjames@keepmebreathing.com
83 ROWAN AVENUE HOVE BN3 7JH
Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
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About KEEP ME BREATHING
KEEP ME BREATHING is a registered charity in England and Wales (registration number 1201757), rated "Good Standing" with a CharityScore of 55/100 — a charity in good standing based on official Charity Commission data. In its most recent reporting year (2025), KEEP ME BREATHING reported a total income of £134,340 and total expenditure of £174,625 (a spending ratio of 130%, indicating strong allocation of funds to charitable activities). According to the Charity Commission, KEEP ME BREATHING operates with the following stated purpose: Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS. Our analysis has identified 1 high-severity concern for this charity. We recommend reviewing the details below. This profile is based on publicly available data from the Charity Commission for England and Wales and is updated regularly. CharityScore provides independent, data-driven transparency ratings to help donors give with confidence.
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Score Breakdown
Financial History
Latest spending ratio: 130.0% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £134,340 | £174,625 | 130% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026