INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION
Registration #1182873 · Registered
https://www.ipwso.org/office@ipwso.org
IPWSO Salisbury House CB1 2LA
IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.
Are you from INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION? Upgrade to a Pro Profile to add your logo, description, and a direct donate button.
About INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION
INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION is a registered charity in England and Wales (registration number 1182873). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 88/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION reported a total income of £206,698 and total expenditure of £220,970, a spending ratio of 107% which is broadly in line with its income. According to the Charity Commission register, INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION describes its activities as follows: IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available. Our analysis found no significant governance concerns for INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Want a detailed Benchmark Report for INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION?
Get a 4-page PDF report comparing this charity to similar organisations — including trustee count, spending ratio, income benchmarks, a live website audit, and personalised recommendations for improving visibility and score.
Request Free ReportScore Breakdown
Financial History
Latest spending ratio: 106.9% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £206,698 | £220,970 | 107% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026