INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION

Registration #1182873 · Registered

https://www.ipwso.org/

office@ipwso.org

IPWSO Salisbury House CB1 2LA

88
out of 100
Platinum

IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.

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About INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION

INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION is a registered charity in England and Wales (registration number 1182873). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 88/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION reported a total income of £206,698 and total expenditure of £220,970, a spending ratio of 107% which is broadly in line with its income. According to the Charity Commission register, INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION describes its activities as follows: IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available. Our analysis found no significant governance concerns for INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Score Breakdown

Trustees & Governance25 / 25
Financial Health23 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 106.9% of income spent on charitable work

YearIncomeSpendingRatio
2025£206,698£220,970107%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026