EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE

Registration #287122 · Registered

kosiceax913@blueyonder.co.uk

91 OAKENSHAW ROAD REDDITCH B98 7PN

46
out of 100
Needs Review

Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.

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About EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE

EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE is a registered charity in England and Wales (registration number 287122). Based on official Charity Commission data, it holds a "Needs Review" rating with a CharityScore of 46/100 — a charity with several areas that warrant further review before donating. This score suggests several areas of concern that donors should investigate before giving. No financial data has been submitted to the Charity Commission for EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE, which may indicate the charity's income falls below the filing threshold, or that returns have not been submitted. According to the Charity Commission register, EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE describes its activities as follows: Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge. Our analysis identified 1 minor governance flag for EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE. No critical or high-severity concerns were found. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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⚠️ Red Flags (1)

Low
Transparency: No financial data available

Score Breakdown

Trustees & Governance12 / 25
Financial Health0 / 25
Filing History & Transparency17 / 30
Regulatory Standing10 / 10

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026