BARTH SYNDROME UK
Registration #1181830 · Registered
www.barthsyndrome.org.ukinfo@barthsyndrome.org.uk
1 THE VIKINGS ROMSEY SO51 5RG
Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.
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About BARTH SYNDROME UK
BARTH SYNDROME UK is a registered charity in England and Wales (registration number 1181830), rated "Platinum" with a CharityScore of 90/100 — one of the highest-rated charities in England and Wales based on official Charity Commission data. In its most recent reporting year (2025), BARTH SYNDROME UK reported a total income of £58,080 and total expenditure of £36,586 (a spending ratio of 63%, indicating a reasonable proportion of funds directed to charitable work). According to the Charity Commission, BARTH SYNDROME UK operates with the following stated purpose: Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure. No significant governance concerns were identified for BARTH SYNDROME UK in our analysis. This profile is based on publicly available data from the Charity Commission for England and Wales and is updated regularly. CharityScore provides independent, data-driven transparency ratings to help donors give with confidence.

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Financial History
Latest spending ratio: 63.0% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £58,080 | £36,586 | 63% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026