ALSTROM SYNDROME UK
Registration #1071196 · Registered
www.alstrom.org.uksteve.scoffield@alstrom.org.uk
The Rectory Barnstaple Hill EX32 0PH
Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.
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About ALSTROM SYNDROME UK
ALSTROM SYNDROME UK is a registered charity in England and Wales (registration number 1071196). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 95/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), ALSTROM SYNDROME UK reported a total income of £379,388 and total expenditure of £335,401, a spending ratio of 88% indicating a strong proportion of funds directed to charitable work. According to the Charity Commission register, ALSTROM SYNDROME UK describes its activities as follows: Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do. Our analysis found no significant governance concerns for ALSTROM SYNDROME UK. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

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Financial History
Latest spending ratio: 88.4% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £379,388 | £335,401 | 88% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026