Alex, The Leukodystrophy Charity

About Alex, The Leukodystrophy Charity

Alex, The Leukodystrophy Charity is a registered charity in England and Wales (registration number 1106008). Based on official Charity Commission data, it holds a "Platinum" rating with a CharityScore of 88/100 — one of the highest-rated charities in England and Wales for governance and transparency. This places it among the top-rated charities in our database, reflecting strong performance across governance, financial health, and regulatory compliance. In its most recent reporting year (2025), Alex, The Leukodystrophy Charity reported a total income of £1,077,604 and total expenditure of £1,026,242, a spending ratio of 95% which is broadly in line with its income. According to the Charity Commission register, Alex, The Leukodystrophy Charity describes its activities as follows: A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals. Our analysis found no significant governance concerns for Alex, The Leukodystrophy Charity. No regulatory actions, filing failures, or financial anomalies were detected in the available public data. This profile is based on data publicly available from the Charity Commission for England and Wales and is updated periodically as new filings are processed. CharityScore UK provides independent, data-driven transparency ratings to help donors give with confidence — we are not affiliated with this charity or any government body.

Score Breakdown

Financial History

Latest spending ratio: 95.2% of income spent on charitable work