CYSTINOSIS FOUNDATION OF THE UK
Registration #1074885 · Registered
www.cystinosis.org.ukadvice@cystinosis.org.uk
Cystinosis Foundation UK Unit 81304 B2 2NJ
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
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Financial History
Latest spending ratio: 55.9% of income spent on charitable work
| Year | Income | Spending | Ratio |
|---|---|---|---|
| 2025 | £34,431 | £19,238 | 56% |
Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026