CDKL5 UK

Registration #1207922 · Registered

www.curecdkl5.org.uk

admin@curecdkl5.org

Henleaze Business Centre Henleaze House BS9 4PN

67
out of 100
Good Standing

To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.

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Score Breakdown

Trustees & Governance25 / 25
Financial Health10 / 25
Filing History & Transparency20 / 30
Regulatory Standing10 / 10

Financial History

Latest spending ratio: 48.4% of income spent on charitable work

YearIncomeSpendingRatio
2025£60,140£29,13048%

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026