EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE

Registration #287122 · Registered

kosiceax913@blueyonder.co.uk

91 OAKENSHAW ROAD REDDITCH B98 7PN

out of 100

Needs Review

Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.

⚠️ Red Flags (1)

Low

Transparency: No financial data available

Score Breakdown

Trustees & Governance12 / 25

Financial Health0 / 25

Filing History & Transparency17 / 30

Regulatory Standing10 / 10

Data sourced from the Charity Commission for England & Wales · Last scored 6/11/2026